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| Marc Levison |
"When you learn that your father has a deadly disease with no cure and that his body will deteriorate to the point he is completely paralyzed but his mind will remain sharp – it hurts everyday and feels unfair and is hard to stay positive, but my dad being such a source of strength along with my mom have inspired and made me believe anything is possible."
Brent Levison was 18 years old when his father, Marc, was diagnosed with ALS, more commonly known as Lou Gehrig’s disease.
ALS is short for amyotrophic lateral sclerosis, a disease that kills the nerves that the brain uses to move muscles.
It has no known cure.
Marc has had the disease for more than 19 years – making him one of the longest-lived survivors in the world. He speaks in mumbles and can only move one hand, yet he continues to race around Bexley in his motorized wheelchair.
At 8:30 a.m. Aug. 31, Jeffrey Park will host the 6th Annual Marc Levison 5K Run/Walk for Lou Gehrig’s disease.
"Over the past five years, the run has raised $115,000 for research into motor neuron diseases like ALS at Nationwide Children’s Hospital," Brent said.
In 2007 alone, the event drew 300 participants and raised $28,000. So far, only 50 participants have signed up; however, most people will wait until the actual event, Brent said.
Donations can be sent to: The Helping Link Foundation c/o Marc Levison Run for ALS, 2740 Fair Ave., Columbus, OH 43209.
To sign up for the race, register at www.premierraces.com/races/marclevison.html.
To become a sponsor for the race, contact Brent at 296-4625 or e-mail him at brentlevison@gmail.com.
My husband has Bulbar ALS, he is about 63 years old it was diagnosed 2 years ago. It was getting more difficult to live for him, because of stiff muscles he couldn’t even move. Riluzole and tofersen medicines were given, but didn’t give much relief. He couldn’t eat food without choking. I thought this might be the last stage and the medications he was given did not help at all, so I started to do alot of research on Ayurveda treatments, I was introduced to Natural Herbs Centre and their ALS/MND Ayurveda Protocol. He started on the Ayurveda Treatment last year, his symptoms gradually diminished including his vocal cord spasm, Muscle Weakness, speech and Difficulty with swallowing. Reach them at naturalherbscentre.com , he is getting active again since starting this treatment, he is able to walk again ( down the street and back ) he has also resumed exercising to strengthen muscles and lo longer require a feeding tube!! God Bless all ALS Caregivers. Stay Strong, take small moments throughout the day to thank yourself, to love your self, and pray to whatever faith, star, spiritual force you believe in and ask for strength. I can personally vouch for these remedy but you would probably need to decide what works best for you.